Soren's MRI Results

We got the results back! Here's what the doctor said:

"I know you are anxiously awaiting results of Soren's MRI- so I wanted to email you an update.

It shows that the end of the cord is a bit thickened - not too much, but moderately and there is what they call an incidental cyst (very small). I have sent off the results to our specialist and am waiting to hear if he thinks there should be any follow up to this. He will review the images and let me know and I will of course let you know what he says."

I was just writing her a brief thank you note when I got another e-mail with the notes from the specialist. S/He said:

"I have reviewed the MRI; the filum is mildly thickened at 1.2mm but generally we are not concerned until the filum is 1.5mm or higher. Also he does not have a low lying conus or any fat in the filum. I consider this a negative exam. Also no need to follow up the filar cyst. Hope this helps."

I sent her another e-mail to verify whether or not we need to keep an eye out for any specific symptoms as he grows or if he's basically okay for the rest of his life. She said:

"At this point we would treat Soren just as we would anyone else- no special risk factors."

That sounds pretty positive, so...HOORAY!

One of a Kind

How many 5 month olds do YOU know who have to get a special outfit for an MRI? Not many, I bet. Isn't he beautiful?

Since I'm sure you're wondering, he's got a deep dimple on his bum. That part of the skin develops at the same time as the spinal cord, so he needs an MRI to determine whether or not his spinal cord is tethered. He went through the procedure (including sedation) like a champ, and we are awaiting the results. I'll keep you posted. 

Greet the Day

Ren always climbs into bed with me when he wakes up. A few days ago he climbed in, patted his tummy, and said "Mommy, my tummy is not full of cough drops. I need some!" Um.....right.

Life Through Ren's Eyes

And the artistic version: